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All - Clinical Trials. gov This website contains federally and privately funded clinical trials in the US and abroad. It hosts trials relating to virtually every type of disease or condition.
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AFTD (Association for Frontotemporal Dementias) The Association for Frontotemporal Dementias (AFTD) is a nationwide non-profit organization whose mission is to promote and fund research into finding the cause and cure for the frontotemporal dementias; to provide information, education, and support to persons diagnosed with frontotemporal dementias (FTD) and their families and caregivers; and to educate physicians and allied health professionals about FTD.
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ALS Association To lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
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Alzheimers Association The Alzheimer's Association is the world leader in Alzheimer research and support. Through our national network of advocates and chapters, we advance research, improve services and care, create awareness of Alzheimer's disease and mobilize support. Our vision is a world without Alzheimer's disease.
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Benign Essential Blepharospasm Research Foundation (BEBRF) Blepharo means "eyelid". Spasm means "uncontrolled muscle contraction". The term blepharospasm ['blef-a-ro-spaz-m] can be applied to any abnormal blinking or eyelid tic or twitch resulting from any cause, ranging from dry eyes to Tourette's syndrome to tardive dyskinesia.
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Arthritis Foundation The Arthritis Foundation Web site is designed to help you get the answers you need when you need them.
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BiPolar Significant Others BiPolar Significant Others is a web site and mailing list providing support and information for the spouses, family, friends and other loved ones of persons suffering from bipolar disorder (manic depression).
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BrainandSpinalCord.org Whenever a person or family is suddenly confronted with the world-changing experience of a catastrophic spinal cord injury or brain injury, there are a host of questions but seemingly few solid answers. These questions involve a wide spectrum of issues: health, rehabilitation, hope for recovery, current research, financial, legal, and the list goes on. BrainandSpinalCord.org was created as a knowledge-base for brain injury and spinal cord injury survivors to help answer these kinds of questions.
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Brain Injury Association The Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI).
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Cancer - Asbestos Cancer and Mesothelioma Support Center The Asbestos Cancer and Mesothelioma Support Center is solely concentrated on the knowledge of, and the issues stemming from, exposure to asbestos. In attempt to educate about the seriousness of asbestos exposure and mesothelioma we are seeking substantial, relevant sites containing credible content and/or programs.
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Cancer - Cancervive Cancervive is a non profit organization founded by childhood cancer survivor Susan Nessim. Cancervive provides support, education and advocacy for survivors,families and the community.
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Cancer - American Cancer Society ACS is a nationwide, community-based, voluntary health organization that is committed to fighting cancer through balanced programs of research, education, patient service, advocacy, and rehabilitation.
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Cancer - Cancercare CancerCare® is the oldest and largest nonprofit agency dedicated to helping people face the many challenges of a cancer diagnosis. CancerCare® provides free professional support services, including counseling, education, financial assistance and practical help, to people with cancer, their loved ones, and healthcare professionals across the country.
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Cancer- Immerman's Angels One on One Cancer Support: Connecting Cancer Fighters, Survivors and Caregivers. Extract from a letter from founder Jonny Imerman, "I wondered: "What if every cancer fighter could talk to a cancer survivor, who not only had beaten the same type of cancer, but who also was the same age and gender as the fighter? The cancer survivor would be an angel walking, living proof that the fighter could win too. What an amazing connection." Imerman Angels also matches caregivers of cancer fighters to other caregivers.
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Cancer-Imtooyoungforthis.org I'm Too Young For This.org is a place for young adults affected by cancer. There are an estimated 600,000 in the U.S., as well as their caregivers -- family or spousal. The site includes a link to the Stupid Cancer Show -- "the voice of young adults with cancer."
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Cancer - National Cancer Institute Questions about cancer?
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Cancer - National Cancer Institute in Espanol ¿Preguntas sobre el cáncer?
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Cancer - Patient Resource Publishing Services for patients include a matching service for support. Visit the website for more information.
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Cancer - Survivorship A-Z Our Unique Mission: To provide the practical, financial and legal information you need to thrive in the "new normal" that exists after a life-changing diagnosis. Our information is modified when appropriate to specific conditions such as Cancer or HIV/AIDS, and can be tailored for your life and situation through an Individual Action Plan.
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Cancer Support Community Formerly the Wellness Community (TWC), merged with Gilda's Place. An international non-profit organization dedicated to providing support, education and hope for all people affected by cancer - at no cost.
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Chrohn's and Colitis Foundation of America The Crohn's and Colitis Foundation of America is a non-profit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis.
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Dementia Guide Welcome to DementiaGuide, your web-based companion for dealing with dementia. Here, you'll find helpful information about dementia and the convenient online service, SymptomGuide™, a practical tool for recording, tracking and measuring the effects of dementia.
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Endocrine - The Hormone Foundation The Hormone Foundation is dedicated to providing information about endocrine system diseases including diabetes, thyroid problems, and osteoporosis.
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Dementia-Palliative Dementia Care Resources We are committed to promoting public and professional awareness around palliative care needs facing individuals with advanced dementia and their caregivers. We are dedicated to providing access to appropriate online resources for family and professional caregivers.
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Diabetes - American Diabetes Association The American Diabetes Association is leading the fight against the deadly consequences of diabetes and fighting for those affected by diabetes. The Association funds research to prevent, cure and manage diabetes; delivers services to hundreds of communities; provides objective and credible information; and gives voice to those denied their rights because of diabetes. Founded in 1940, our mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. For more information please call the American Diabetes Association at 1-800-DIABETES (1-800-342-2383) or visit www.diabetes.org. Information from both these sources is available in English and Spanish. Find out what is happening in your area.
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Depression and Bipolar Support Alliance The Depression and Bipolar Support Alliance (DBSA) is the nation’s leading patient-directed organization focusing on the most prevalent mental illnesses – depression and bipolar disorder.
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Epilepsy Foundation The Epilepsy Foundation is the national voluntary agency solely dedicated to the welfare of the 2.7 million people with epilepsy in the U.S. and their families.
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Fibromyaligia Foundation, The National Our mission is to develop and execute programs dedicated to improving the quality of life of people affected with Fibromyalgia.
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National Fragile X Foundation Resources for Fragile X Syndrome and related conditions of Fragile X Tremor Ataxia Syndrome (FXTAS) and Fragile X Primary Ovarian Insufficiency (FXPOI).
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GBS/CIDP Foundation International The GBS/CIDP Foundation International is the only voluntary, nonprofit organization that provides support to patients of Guillane-Barre Syndrome or Chronic Inflammatory Demyelinating Polyneuropathy and their families, awards grants to researchers and offers education to the public and professional communities.
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Heart - American Heart Association Our mission is to reduce disability and death from cardiovascular diseases and stroke.
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Hemophilia Foundation, The National The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
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Huntington's Disease - The Hereditary Disease Foundation The Hereditary Disease Foundation focuses on Huntington's disease, a fatal, autosomal-dominant neurological illness causing involuntary movements, severe emotional disturbance and cognitive decline.
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Immune - American Autoimmune Related Diseases Assoc The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, research, and patient services in an effective, ethical and efficient manner.
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Immune - (CFIDS) Chronic Fatigue & Immune Dysfunction Syndrome Assoc of America Chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) and by other names, is a complex and debilitating chronic illness that affects the brain and multiple body systems. On this portion of our website you can find detailed information about CFIDS, its symptoms, diagnosis, treatment, important research findings and how it affects the lives of those who live with it everyday.
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Immune Deficiency Foundation Primary immune deficiency diseases are disorders in which part of the body's immune system is missing or does not function properly.
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Kidney Foundation, The National The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
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Lupus Foundation of America With nearly 300 chapters, branches and support groups in 32 states, the Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus.
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Mental Illness - (NAMI) National Alliance for the Mentally Ill NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots mental health organization dedicated to improving the lives of individuals and families affected by mental illness. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country.
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Movement Disorders- Life In Motion Movement disorders are chronic, often painful, and debilitating neurological conditions that affect the ability to control movement. Having a movement disorder can make it difficult – even impossible – to do the routine things in life that most people take for granted.
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Movement Disorders - WE MOVE The Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web.
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Multiple Sclerosis and Caregivers Multiple Sclerosis and Caregivers is an interactive DVD that takes a look at
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Multiple Sclerosis Association of America MSAA's mission is to enrich the quality of life for everyone affected by multiple sclerosis. Our wide array of programs and services bring ongoing support and direct services to people with MS and their families throughout the country. MSAA also serves to promote greater understanding of multiple sclerosis and the diverse needs and challenges of people with MS.
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Multiple Sclerosis Society, The National The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS. Founded in 1946, the National Multiple Sclerosis Society supports more MS research, offers more services for people with MS, provides more professional education programs, and furthers more MS advocacy efforts than any other MS organization in the world.
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Muscular Dystrophy Association The Muscular Dystrophy Association offers caregiver support groups for family,
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Myasthenia Gravis Foundation of America The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency dedicated solely to the fight against myasthenia gravis.
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Pain - American Pain Foundation The American Pain Foundation is an organization serving people with pain through information, advocacy, and support. Our mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
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Paralysis - Christopher and Dana Reeve Foundation The Christopher and Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
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Parkinson Foundation, The National NPF is the largest and oldest national Parkinson foundation in the United States. NPF supports Parkinson-related research, patient care, education, training, and outreach.
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Parkinson Foundation - The Northwest A nonprofit organization established to improve quality of life for the Northwest (U.S.) Parkinson's disease community through programs of awareness, education, advocacy and care.
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Parkinsons - 2nd World Parkinson Conference The 2nd World Parkinson Congress | WPC 2010 (Glasgow, Scotland, Sept. 28-Oct. 1, 2010) aims to provide an international forum for the latest scientific discoveries, medical practices and caregiver initiatives related to Parkinson's disease.
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Pituitary - The Pituitary Network Association The Pituitary Network Association (PNA) is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.
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Reflex Sympathetic Dystrophy Syndrome Association The Reflex Sympathetic Dystrophy Syndrome Association was founded in 1984 to promote public and professional awareness of Reflex Sympathetic Dystrophy Syndrome (RSD or RSDS), also known as Complex Regional Pain Syndrome (CRPS I).
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Scleroderma Foundation, The The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends.
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Spinal Association, The United Our mission is to provide expertise, create access to resources and strengthen hope thereby enabling people with spinal cord injuries and disorders (SCI/D) to
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Spinal Cord-Arachnoiditis Chronic intractable incapacitating pain and sensory, motor and autonomic nerve dysfunction.
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Spinal Cord - National Spinal Cord Injury Association Founded in 1948, the National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families. This number grows by thirty newly-injured people each day.
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Stroke - American Stroke Association By the year 2010, the American Stroke Association will reduce stroke and risk of stroke by 25 percent through a variety of collaborative ventures and volunteer commitments at the local and national levels.
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Stroke - Research Center for Stroke & Heart Disease The Research Center for Stroke & Heart Disease is a non-profit organization dedicated to preventing stroke and heart disease nationally.
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Tremor Action Network TAN's mission is to spread awareness of essential tremor (ET) by advocating for a cure through research. Our one-on-one services provide support and guidance to patients, family members and caregivers through information, resources, and volunteer advocates.
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Vision - American Foundation for the Blind Expanding possibilities for people with vision loss
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