Support for Spousal Caregivers

WSA Membership Statistics

WSA has approximately 425 members who are or were caregivers or partners to an ill or disabled partner or spouse as of 2021. This does not include members of the WSA Online Forum, ~2.5% who do not have emails or computer access, or members of our Facebook group (3,100 members).

  • By gender in 2014
    • 76% of WSA members are women
    • 24% are men
  • By age in 2014 - 75% of our membership is age 65 or under. The 20-45 age range is the fastest growing membership in WSA
    • Ages 20-35 - 3%
    • Ages 36-45 - 12%
    • Ages 46-55 - 26%
    • Ages 56-65 - 34%
    • Ages 66+ - 25%
  • By location in 2021
    • Almost all 50 United States are represented in WSA membership, with concentrations in:
      • Northeast - NY, NJ, PA, etc. - 36%
      • California - 18%
      • Mid-Atlantic - VA, MD, DC - 14%
    • International members are from Canada, Japan, Italy and Australia
  • By their partners' diseases, illnesses, and disabilities as of 2021 (in order of prevalence) 
    • Neurodegenerative diseases including Multiple Sclerosis, Parkinson's, and ALS - 22%
    • Cardiovascular disease including stroke -11%
    • Alzheimer's, Dementia and memory loss illnesses - 11%
    • Hematological and solid cancers - 9%
    • Neurological and brain disorders - 9%
    • Autoimmune diseases - 3%
    • Chronic pain - 3%
    • Metabolic disorders including Diabetes - 3%
    • Mental illnesses or disorders - 3%
    • Other or didn't report - 5%

 

Research on Caregiving

AARP and National Alliance for Caregiving report - Caregiving in the U.S. (2020)

AARP Public Policy Institute and United Hospital Fund - Family Caregivers Providing Complex Chronic Care to Their Spouses (2014)

AARP Policy Institute report - Valuing the Invaluable: 2011 Update: The Growing Contributions and Costs of Family Caregiving (2011)

Caregiver.com online study - Family Caregivers Face Major Financial Burdens, Increased Stress, and Work Struggles (2011)

 

 

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