Peer support
Almost 6 million people in the US care for an ill or disabled partner
Chronic illness changes relationships. When spouses or partners transition to caregiver and patient roles, they often face the loss of that singular intimate relationship and the companionship it brings. Spousal caregivers spend more hours caregiving each week, doing more intense tasks, and with less outside assistance, than other types of caregivers. The financial impacts of caregiving are different for well spouses from other types of caregivers too - often the partner with illness and the caregiver must give up paid employment (at the same time that expenses increase due to medical costs). Caregiving for your wife, husband, or partner impacts the decision to have children, the way children are raised, and where and how one lives, works, and retires. There are few areas of life that are left untouched by the caregiver/patient role in partnered relationships. Well Spouse Association provides support and resources to people of all ages who care for partners with chronic illness or disability. We provide support whether you feel like a caregiver or not. We are an inclusive and welcoming community - no matter your age, partnership arrangement, sexuality, orientation, gender, or religious beliefs.
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Bob has been a WSA member since 1992, a long-time support group leader, and a Board member and Executive Committee member since 2006. He married his high school sweetheart Kathy and they were married for 50 years until her passing in June 2018 from MS. Shortly after their marriage, Kathy was diagnosed with MS. Bob served in the US Army as an officer and then returned to graduate school in the 1970’s. He had a successful career as an accountant and as an Internal Revenue Agent until his early retirement to care for his wife in 2004.  Bob has an MBA from La Salle University. He is a resident of New Jersey.

Laurel Wittman – President

Laurel joined WSA as a member in 2014 and joined the Board in 2020 to focus on outreach for younger well spouses. She and her husband Eduardo have been married for 16 years. Eddie was diagnosed with MS in 1998 at the age of 24, and his disease course has been aggressive—he has needed 24-hour care for years. He currently lives at home but he also spent two years in an assisted living facility, so Laurel is familiar with a range of caregiving situations. Laurel has been a venture lender with Oxford Finance LLC since 2004, providing loan facilities to life sciences companies in the US, Canada, and Europe. She previously volunteered as Treasurer for CLAW USA, a non-profit alliance of theatrical lady arm wrestlers focused on social justice. She has a BS in Commerce with a concentration in Finance from the University of Virginia. She and her husband reside in Falls Church, Virginia.

Al Kozin – Treasurer and IT Administrator

Al has served as Webmaster and Site Administrator for WSA since 2013 and joined the Board in 2018 as Treasurer. He is a soon-to-be-retired electrical engineer. He was caregiver for his wife from 2003 until her death in 2010. Al attended Drexel Institute of Technology and Temple University. Al is a resident of Lansdale, PA. 

Terri Corcoran – Secretary and Co-Editor of Mainstay

Terri has been a member of WSA since 2005 and a Board member since 2007. She is the Board Secretary, co-editor of WSA's Mainstay newsletter, WSA's Public Relations Chair, and co-leader of the Arlington, VA Well Spouse Support Group. For over 15 years, she cared for her husband who was severely disabled mentally and physically by Fragile X Tremor Ataxia Syndrome. Terri has been widowed since 2016, and remains active in WSA to return the support she so gratefully received for so many years as a caregiver. Before her husband became ill, she worked as a translator, editor and arts reviewer, including as editor and arts writer for THE REVIEW, "Washington D.C.'s original arts/news magazine" (1992-2002) and co-organizer of the annual International Conference on LASERS (1993-2001). She has a BA in Russian and French from Goucher College. She lives in Falls Church, Virginia.

Barry Appelbaum

Barry joined Well Spouse in 2015, started a local support group in his community, and joined the WSA Board as fundraising chair in 2020. Married for 25 years, his wife Susanne had a massive stroke in 2011, with further complications leading to a hemorrhage in emergency surgery, resulting in a severe brain injury, aphasia and apraxia, partial paralysis and other deficits. Homebound, she requires round-the-clock support, as well as speech, physical and occupational therapy. Barry is a sales and marketing executive with 40 years of experience, currently employed at The Hibbert Group. Barry is also on the boards of Temple Shaarai Shomayim and the Jewish Community Alliance of Lancaster. Barry attended City University of New York and is a resident of Lancaster, Pennsylvania.

Donna Amato

Donna joined Well Spouse in 2002 and served on the Board originally in 2003-04; while caregiving caused her to pull back from extracurricular activities, she continued to serve fellow Well Spouses by organizing respite events on the East Coast. Donna rejoined the Well Spouse Board of Directors in 2020.

Jerry Bishop

Jerry joined Well Spouse in 2001 and has been a board member since 2004 (including as Chairman from 2008 to 2017). His spouse Cindy has had MS since 1992, shortly after they married in 1987. Cindy is still at home and Jerry is her primary caregiver along with their now adult children.  He has been a support group leader for many years. Jerry has had a 35+ year career in the communications field and currently works at Verizon as an administrator.  He studied at Northeastern University and Middlesex Community College.

Lawrence Bocchiere III 

Larry is former Chairman and President Emeritus of WSA. He joined WSA in 2001, became its Legislative Liaison, served two terms as President, and currently serves as Chairman of the Board. Larry’s wife, Deborah, passed away in 2013 after a 17-year illness during which he was her primary caregiver. Larry worked for the U.S. Postal Service for 33 years, as a postmaster in Goldens Bridge, Cos Cob, and Southport, CT. Early in his career, he established the Stamford CT Area Local American Postal Workers Union, AFL-CIO, bringing together smaller entities under the umbrella of a large labor organization. He was elected state president and pursued a policy of education and representation for smaller offices at the state level. He was asked to serve as chair of the APWU AFL-CIO’s National President’s Conference, serving over 70,000 members. He eventually served as Northeast regional coordinator. Larry spent 14 years as a 4H Leader at Beardsley Zoo in Bridgeport, mentoring children in public speaking and animal husbandry. He attended the University of Bridgeport. Larry and his wife Cynthia reside in Wolcott, Connecticut.

John Camp

John joined WSA in 2020 and joined the Board shortly thereafter. He also facilitates WSA's Suburban Maryland support group meetings. John was a successful real estate developer in Maryland, Virginia and Delaware. He graduated with honors in economics from the University of Connecticut. He and his wife Mindy live in Maryland. 

Tatiana Durbak

Jane Lupo

Jane has been a member of WSA since 2008, and a board member since 2011. Her primary focus is our Well Spouse Telephone Support Groups. Her husband has chronic pain disorder. Jane is a Registered Nurse with over twenty years of experience providing care for adult patients across the oncology spectrum.  She has an AS in Nursing Science and studied Multicultural Nursing and Health Education at UC-Dominguez Hills. She and her husband reside in Neenah, Wisconsin.

Sheldon Friedman

Sheldon joined Well Spouse more than 20 years ago and has been a caregiver for his wife since her MS worsened in the early 1990s. Sheldon joined the WSA Board in 2017 to apply his experience as a labor economist and researcher to advocate for public policies needed by Well Spouses. Prior to retiring in 2017, Sheldon spent much of his career at the AFL-CIO, and he chaired the Federal Prevailing Rate Advisory Committee at OPM during the Obama administration. He has co-edited four books in the field of labor economics and industrial relations and authored or co-authored numerous publications. Sheldon is an MIT graduate and lives with his wife Marjorie in Springfield, Virginia.

Carol Christofero-Snider

Carol joined WSA's board in September 2022. She is owner of RL Snider & Associates, a private practice specializing in vocational rehab and case management for brain injured clients. She has an MS in Counseling from Portland State University and a BA in Social Science from Marylhurst University. She lives in Oregon.

 

2023 Committee Assignments

Support Group Leaders or State or Regional Contacts are volunteers -- giving back support they themselves have received. Please allow time for them to reply to you -- many are current spousal caregivers.  WSA is international: to find support groups scroll down and click on its your state.

Start a Support Group.

WSA's Honorary Board members promote the agenda and activities of the Well Spouse Association and its members. 

Teena Cahill, Psy.D.

"Resilient," "passionate," "inspiring," and "fun" are words often used to characterize Teena Cahill, Psy.D., respected expert, educator, speaker, humorist, and author. Dr. Cahill brings a uniquely empowering perspective to topics of leadership, health & wellness, productivity, contribution, and success. Her insight and expertise stem from ideas based in evidence-based research in cognitive behavioral psychology, positive psychology, leadership and the new science of wellness, plus hands-on experience in all parts of life. A spousal caregiver and well spouse herself, Dr. Cahill is the author of The Cahill Factor: Turning Adversity into Advantage. More about her work is available at teenacahill.com. She was elected to WSA’s Honorary Board in 2011.

Barry J. Jacobs, Psy.D.

Barry Jacobs is a clinical psychologist, a family therapist and a member of AARP's Caregiving Advisory Panel. He is also a former magazine journalist. His passion for enhancing support for family caregivers led him to write or cowrite dozens of articles and several books on the subject, including The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent, AARP Meditations for Caregivers: Practical, Emotional and Spiritual Support for You and Your Family, and Love and Meaning after 50. He served as caregiver for his mother and stepfather, both of whom had dementia. Jacobs has appeared as a caregiving expert on Dr. Phil and given more than 600 presentations for family caregivers, community groups, and medical and mental health professionals. His areas of expertise include behavioral health integration, complex care management, enhancing family caregiver engagement and supports, team-based care, and provider wellness. He was elected to WSA’s Honorary Board in 2011. 

Dr. Zachary White

Zachary White is a Professor of Communication who researches and writes about the caregiver experience. He received his Ph.D. in communication from Purdue University. His academic research and teaching focus on how people manage meaning and communicate their experiences amidst high levels of ambiguity.  He has published and presented academic research addressing health communication as encountered by medical providers, informal caregivers, family members, and organizational employees. He and Donna Thomson wrote The Unexpected Journey of Caring: The Transformation From Loved One to Caregiver. He teaches university courses at the graduate and undergraduate level addressing topics including provider-patient communication, health and illness narratives, digital health literacy, interpersonal communication and relationship development on and offline, online social support and disclosure, the management of health-related disclosures in the workplace, and sense making amidst life transitions. His work can be found at theunpreparedcaregiver.com. He was elected to WSA’s Honorary Board in 2016. 

Aaron Blight, Ed.D.

Aaron Blight is an international speaker and consultant on caregiving, aging, and healthcare. He is the Founder of Caregiving Kinetics and has been recognized as a “Top 100 Healthcare Leader” by the International Forum on Advancements in Healthcare. He attends caregiver support groups to facilitate discussions related to his book, When Caregiving Calls: Guidance as You Care for a Parent, Spouse, or Aging Relative. Aaron’s passion for supporting caregivers is rooted in his personal experience as a family caregiver; his professional work as the owner of a large home care company and as a leader at the Centers for Medicare and Medicaid Services; and his study of caregiving as a phenomenon of social science. Aaron serves as an Adjunct Professor at Shenandoah University and an advisory board member of the Shenandoah Area Agency on Aging. He holds a bachelor’s degree from Brigham Young University, a master’s degree from the University of Baltimore, and a doctorate degree from The George Washington University. Aaron was elected to WSA's Honorary Board in 2020.

Barbara Kivowitz, MSW

Barbara Kivowitz, MSW is a clinician and consultant specializing in relationship-centered health care. In her consulting practice she works with health care organizations to help them develop their innovation and collaboration capabilities and to deliver more patient- and family-focused care. She developed programs for Stanford Health Care and Stanford Medical School to teach clinicians strategies for supporting the patient/caregiver relationship. She has also spoken on this topic to patients/caregivers and to professional groups at Massachusetts General Hospital, Dana-Farber Cancer Institute, UCSF Comprehensive Cancer Center, and to the Leukemia and Lymphoma Society. She also worked with Vermont on the implementation of their statewide, health reform initiative, and helped a large health care system learn to use technology to work more collaboratively. She was on the Board of Trustees of Harvard Vanguard Medical Associates and is on the Board of Overseers of the Massachusetts Society for the Prevention of Cruelty to Animals. In her prior career she was a clinical psychotherapist in both community and hospital settings, working with many couples and families dealing with difficult issues, including illness, and she consulted to a hospice program. She has also authored articles on couples and illness for popular and clinical publications and has a widely read blog on this topic.  She holds graduate degrees from Simmons College and Harvard University. She is the co-author of Love in the Time of Chronic Illness: How to Fight the Sickness, Not Each Other, a guide for patient-caregiver partners and for the clinicians who help them.  She has been both the ill partner and a caregiver in her relationship with her husband.

 

WSA addresses the unique challenges that well spouses face every day

Community

Learning that you are not alone

WSA's network of more than 25 monthly peer support groups and our online support groups connect you to others who understand what you're going through.

Find Support

Events

Creating opportunities to meet other members

We host a number of events each year for members, including webinars, respites , and our annual conference - to bring well spouses together.

Meet up

Resources

Sharing our stories

Our Mainstay newsletters give you a voice. We advocate for change with policymakers and share research opportunities with our members.

Tell others

Why Join WSA?

"Some of the best advice for caregivers will come from other caregivers."

-New York Times

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